{"id":2406,"date":"2023-01-13T10:03:08","date_gmt":"2023-01-13T09:03:08","guid":{"rendered":"http:\/\/www.ecolesaintyvesnantes.fr\/site\/?p=2406"},"modified":"2023-04-26T19:07:42","modified_gmt":"2023-04-26T17:07:42","slug":"enduro-solidaire-pour-lassociation-ela","status":"publish","type":"post","link":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/2023\/01\/13\/enduro-solidaire-pour-lassociation-ela\/","title":{"rendered":"ENDURO SOLIDAIRE POUR L&rsquo;ASSOCIATION ELA"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p>&nbsp;<img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-2418\" src=\"http:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/tous-differnts-et-alors.jpg\" alt=\"\" width=\"140\" height=\"89\">&nbsp; &nbsp;<span style=\"font-size: 14pt;\"><strong>ENDURO SOLIDAIRE ET JOURNEE DE LA DIFFERENCE<\/strong><\/span><\/p>\n<p><span style=\"font-family: 'comic sans ms', sans-serif;\"><span style=\"font-family: 'arial black', sans-serif;\">\u00ab\u00a0Mets tes baskets et bats la maladie\u00a0\u00bb : notre enduro au Parc de la Chantrerie pour l&rsquo;association ELA qui agit contre les leucodystrophies&nbsp;<\/span> &nbsp;<\/span><\/p>\n<p>Lors de notre enduro du <strong>samedi 26 novembre 2022<\/strong>, les \u00e9l\u00e8ves ont pr\u00eat\u00e9 symboliquement leurs jambes aux enfants malades qui ne peuvent plus s&rsquo;en servir. <em><strong>Grande f\u00eate familiale avant le T\u00e9l\u00e9thon officiel<\/strong> <\/em>&#8230;<\/p>\n<p>Auparavant, le <strong>vendredi 25 novembre 2022<\/strong>, ils ont v\u00e9cu une journ\u00e9e d\u00e9di\u00e9e \u00e0 la diff\u00e9rence et au handicap : <em>ateliers philosophiques, concours de dessins, motricit\u00e9, ateliers sur les 5 sens &#8230; <\/em><strong>Un cocktail d&rsquo;activit\u00e9s organis\u00e9es par l&rsquo;\u00e9quipe p\u00e9dagogique pour aiguiser le regard des enfants sur la diff\u00e9rence et la richesse qui en d\u00e9coule &#8230;<\/strong><\/p>\n<p>Nous avons&nbsp; aussi eu&nbsp; la visite de parents directement concern\u00e9s par la leucodystrophie , Monsieur et Madame Le Tortorec, ainsi que celle de la&nbsp; championne fran\u00e7aise de 400 m, Sylla Sounkamba, marraine de l&rsquo;association ELA.<\/p>\n<p><strong>Temps de partage, de convivialit\u00e9 et d&rsquo;\u00e9motion o\u00f9 les enfants ont r\u00e9alis\u00e9 qu&rsquo;ils \u00e9taient vraiment chanceux d&rsquo;\u00eatre en pleine forme&#8230;<\/strong><\/p>\n<p><span style=\"font-size: 18pt;\"><strong>Gr\u00e2ce \u00e0 la g\u00e9n\u00e9rosit\u00e9 de tous, nous avons r\u00e9cup\u00e9r\u00e9 2273.90 euros pour l&rsquo;association ELA. Bravo \u00e0 tous!<\/strong><\/span><\/p>\n<ul style=\"list-style-type: circle;\">\n<li><strong><span style=\"font-family: verdana, geneva, sans-serif;\">L\u2019ASSOCIATION ELA&nbsp; : c&rsquo;est qui ?&nbsp;<\/span><\/strong><\/li>\n<\/ul>\n<p><strong>A propos d\u2019ELA&nbsp;: <\/strong>Fond\u00e9e en 1992, l\u2019Association Europ\u00e9enne contre les Leucodystrophies (ELA), parrain\u00e9e depuis 20 ans par Zin\u00e9dine Zidane, regroupe des familles qui se mobilisent pour vaincre ces maladies g\u00e9n\u00e9tiques rares qui d\u00e9truisent la my\u00e9line (la gaine des nerfs) du syst\u00e8me nerveux. Chaque semaine en France, 3 \u00e0 6 enfants naissent atteints de ces pathologies qui entra\u00eenent progressivement la perte des fonctions vitales : la vue, l&rsquo;ou\u00efe, la m\u00e9moire, la locomotion\u2026 L\u2019association, reconnue d\u2019utilit\u00e9 publique depuis 1996, a 4 missions principales :<\/p>\n<ul>\n<li>Financer la recherche m\u00e9dicale<\/li>\n<li>Informer et accompagner les familles concern\u00e9es<\/li>\n<li>Sensibiliser l\u2019opinion publique<\/li>\n<li>D\u00e9velopper son action au plan international<\/li>\n<\/ul>\n<p><a href=\"http:\/\/www.ela-asso.com\" target=\"_blank\" rel=\"noopener\">www.ela-asso.com<\/a><\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-2411 alignright\" src=\"http:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/METS-TES-baskets-300x168.jpg\" alt=\"\" width=\"202\" height=\"113\" srcset=\"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/METS-TES-baskets-300x168.jpg 300w, https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/METS-TES-baskets.jpg 382w\" sizes=\"auto, (max-width: 202px) 100vw, 202px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-2414 alignright\" src=\"http:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/Capture-d\u2019\u00e9cran-2022-10-19-115331-1-300x240.png\" alt=\"\" width=\"269\" height=\"215\" srcset=\"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/Capture-d\u2019\u00e9cran-2022-10-19-115331-1-300x240.png 300w, https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/Capture-d\u2019\u00e9cran-2022-10-19-115331-1.png 754w\" sizes=\"auto, (max-width: 269px) 100vw, 269px\" \/><\/p>\n<div id=\"attachment_2408\" style=\"width: 165px\" class=\"wp-caption alignright\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-2408\" class=\" wp-image-2408\" src=\"http:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/letortore-ela-225x300.jpg\" alt=\"\" width=\"155\" height=\"207\" srcset=\"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/letortore-ela-225x300.jpg 225w, https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/letortore-ela-768x1024.jpg 768w, https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/letortore-ela-1152x1536.jpg 1152w, https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-content\/uploads\/2023\/01\/letortore-ela.jpg 1536w\" sizes=\"auto, (max-width: 155px) 100vw, 155px\" \/><p id=\"caption-attachment-2408\" class=\"wp-caption-text\"><strong>Mme Le Tortorec<\/strong>, maman de deux enfants malades<br \/><strong>Sylla Sounkamba<\/strong>, sprinteuse 400 m<\/p><\/div>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp; &nbsp;&nbsp; &nbsp;ENDURO SOLIDAIRE ET JOURNEE DE LA DIFFERENCE \u00ab\u00a0Mets tes baskets et bats la maladie\u00a0\u00bb : notre enduro au Parc de la Chantrerie pour l&rsquo;association ELA qui agit contre les leucodystrophies&nbsp; &nbsp; Lors de notre enduro du samedi 26 novembre 2022, les \u00e9l\u00e8ves ont pr\u00eat\u00e9 symboliquement leurs jambes aux enfants malades qui ne peuvent<\/p>\n<p><a href=\"https:\/\/www.ecolesaintyvesnantes.fr\/site\/2023\/01\/13\/enduro-solidaire-pour-lassociation-ela\/\" class=\"more-link themebutton\">Read More<\/a><\/p>\n","protected":false},"author":12,"featured_media":2411,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0,"footnotes":""},"categories":[15],"tags":[],"class_list":["post-2406","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"_links":{"self":[{"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/posts\/2406","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/comments?post=2406"}],"version-history":[{"count":1,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/posts\/2406\/revisions"}],"predecessor-version":[{"id":2422,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/posts\/2406\/revisions\/2422"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/media\/2411"}],"wp:attachment":[{"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/media?parent=2406"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/categories?post=2406"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ecolesaintyvesnantes.fr\/site\/wp-json\/wp\/v2\/tags?post=2406"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}